Share this Job

Patient Access Specialist

Date: May 3, 2021

Location: Philadelphia, PA, US

Company: Spark Therapeutics

Join the Spark Team


We were born of innovation, springing from the curiosity, imagination and dedication of remarkable scientists and healthcare visionaries. Our shared mission is to challenge the inevitability of genetic disease by discovering, developing, and delivering treatments in ways unimaginable – until now.


We don’t follow footsteps. We create the path.




The primary responsibility of the Patient Access Specialist (PAS) is to serve as the internal patient liaison for rare/orphan/RPE65. The incumbent will be the initial point of contact for the patient/caregiver and will support the patient journey, from start to finish, providing appropriate feedback to internal (Spark team members) and external (vendors) stakeholders involved in the process.


Case Management:

  • Confirm all required information has been submitted for Enrollment Forms and/or Statements of Medical Necessity; ensure adherence to product label with receipt of appropriate test results and valid consent.
  • Conduct thorough benefits investigations to understand coverage related to the entire episode of care: consultation appointment, product and procedure, and post-treatment evaluations. Understand the approval processes while assessing potential barriers to access; engage Patient Access Liaison (PAL), Payer Lead (PL), and Treatment Center (TC) when necessary.
  • Provide patients/caregivers with details related to available financial resources.
  • In conjunction with Spark’s selected patient travel vendor, coordinate necessary and applicable travel and reimbursements to/from TCs for eligible patients and appointments.
  • Partner with the PAL in engaging with patients/caregivers and TCs.
  • Coordinate solutions to logistical issues that are impacting process progression and access to the appropriate TC.
  • Coordinate the escalation of issues, as necessary, and ensure internal stakeholders are made aware of potential interruptions and delays.
  • Answer any non-medical concerns expressed by a patient/caregiver.
  • Field inquiries as they relate to the non-branded ID YOUR IRD genetic testing program.



  • Develop and offer solutions to the family, when necessary, that may also include communication of alternative insurance options and how families can best connect to available resources
  • Manage the drug order and product distribution process ensuring shipping issues are minimized and product is delivered in a timely manner. 
  • Work closely with the PAL to coordinate patient education, support site of care logistics, and promote disease state and product awareness, as well as provide emotional support for the patient and their caregiver(s).
  • Interact with physicians, nurses, pharmacists, ancillary staff, and patients/families to prevent and address barriers to treatment access

Internal and External Stakeholder Management:

  • Participates in weekly team meetings to provide patient-related updates and discuss possible solutions to presented challenges.
  • Provides vendor management support to our patient travel vendor, participating in monthly status meetings and feedback sessions.
  • Works within a zone model, engaging cross-functional partners to help progress the patient through the treatment journey.
  • Case Management and Logistics Coordination - must be able to provide strong emotional support and empathy for the patients and their caregivers.
  • Support PAL in resolving reimbursement challenges.
  • Complete comprehensive assessments of individual patient needs which includes assessing travel requirements, desired/required TC, financial concerns, and preferred treatment timelines based on scheduling availability.
  • Develop and offer solutions to the family, when necessary, that may also include communication of alternative insurance options and how families can best connect to available resources.
  • Cross-Functional Collaboration – must be able to successfully partner with members of the broader Commercial organization with the common goal of enhancing timely access to treatment for appropriate patients.
  • Work cross functionally to identify and support the resolution of patient access barriers including insurance coverage, reimbursement, financial limitations, scheduling conflicts, and more.
  • Consumer Inquiry Support – must be able to provide compliant and consistent responses to testing, product, and process inquiries in line with approved FAQ and Talking Point resources
  • Provide disease-state awareness and education in response to incoming inquiries.
  • Develop activities with the goal of achieving greater openness and understanding of Spark therapies and processes.
  • Educate families on all Spark patient services programs upon request and support seamless access to available resources.



Education and Experience Requirements



  • Minimum of 2+ years’ experience in the healthcare or biotech industry with a successful track record in case management or patient support.
  • Experience in rare disease preferred.
  • Bachelor's Degree Required
  • Occasional travel may be required to visit TCs, Vendors, Conferences, and/or Off-Site Meetings.

Nearest Major Market: Philadelphia