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Patient Access Specialist- Based In Philadelphia

Date: Dec 7, 2018

Location: Philadelphia, PA, US

Company: Spark Therapeutics

Join the Spark Team


We were born of innovation, springing from the curiosity, imagination and dedication of remarkable scientists and healthcare visionaries. Our shared mission is to challenge the inevitability of genetic disease by discovering, developing, and delivering treatments in ways unimaginable – until now.


We don’t follow footsteps. We create the path.


The primary responsibility of the Patient Access Specialist is to serve as the internal patient liaison for rare/orphan/RPE65.  The incumbent will be the initial point of contact for the patient.   They will monitor the patient journey and provide feedback to internal Spark team members involved in the process.

Candidate must be comfortable presenting Patient Services data to Internal and external Stakeholders

Case Management:

•            Discuss in detail, with the family, available financial resources and any concern the family may have.

•            Support the PAL as they engage with caregivers and patients. 

•            Field inquiries as it relates to Single Gene test (genetic testing) and other questions as it relates to Spark therapies and processes.  

•            Initiate the Benefit Investigation and approval process while assessing potential barriers to access. Engage the PAL and TC lead when necessary.

•            Coordinate solutions to logistical issues that are impacting treatment. Process initiation and access to the appropriate Treatment Center.

•            Escalate situations pertaining to patient access and ensure internal stake holders are made aware of interruptions and/or challenges pertaining to the treatment journey


•            Manage the drug order and product distribution process ensuring shipping issues are minimized and product is delivered in a timely manner. 

•            Work closely with the Patient Access Liaison to coordinate patient education, support site of care logistics and patient facing reimbursement education.

•            Interact with physicians, nurses, pharmacists, ancillary staff, patients/families, and advocacy groups to prevent and address barriers to patient access.

Internal and External Stakeholder Management:

•            Participates in the weekly LUXTURNA Performance Review meetings with Spark leadership to provide Patient related data and clarity

•            PAS collects all information for the enrollment form, ensuring adherence to label with appropriate test results and consent

•            Works cross functionally within a zone model, engaging partners to help progress the patient through the TC journey



•            Be the voice of Spark having the initial contact with patient. Work closely with patients/families to educate on the patient journey and discuss the steps required to gain access to therapy. Provide disease and product education, site of care logistics, and other support services.

•            Must be able to provide strong emotional support and empathy for the patient and caregivers, encouraging forward momentum through the process


•            Support PAL in reimbursement challenges, with an understanding of payer policy and procedure

•            Work cross functionally to identify and support the resolution of patient access barriers including insurance coverage, reimbursement, financial limitations.


•            Assess the needs of the patient, the patient’s family and team of healthcare providers.  This includes the patient’s travel needs and desired/required TC.

•            Develop and offer solutions to the family, when necessary, that may also include communication of alternative insurance options and how families can best connect to available resources.


•            The complexities of gene therapy, an ultra rare disease state, and the cost of drug, drive the need for higher level thinking and execution compared to industry standard PAS level roles

•            Seasoned, mature pharmaceutical professional with a comprehensive understanding of field / patient reimbursement, charitable funding, non-profit organizations.

•            Dedicated to assisting patients/caregivers

•            Must be familiar with relevant legal and regulatory environment in biotech industry

•            Strong communication and listening skills

•            Effective at managing complex individualized cases

•            Strong EQ skills


  • Minimum of 2+ years total business experience in the healthcare or biotech industry, with related experience in case management.   Experience in rare disease preferred.
  • Bachelor’s Degree required, MBA preferred
  • A successful track record in case management, clinical education or patient care required
  • Experience in supporting rare biologic therapy administered by a designated health care provider in a designated institution
  • Experience leading cross functionally and influencing without authority

Nearest Major Market: Philadelphia

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